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Lilly is admitted for fever and given antibiotics just incase of central line infection. I think it is just her body reacting to the severe rash she has gotten from being allergic to the dressing above her broviac.In the past 9 years or so I have only had Lilly on medication 1 time . We treat with homeeopathic medicines but I now find I have no choice but to give my daughter the toxic drugs that will protect her from infection and hopefully cure her cancer.
Thank goodness for the broviac because all her hydration and medicines require NO NEEDLES. This is key for Lilly who had decked one or 2 nurses while being given an injection!!
So the rash starts to clear and there is no longer a fever after about 6 hours after being admitted so her chemotherapy starts on time.
Lilly meets her first friend on the Oncology floor . Her name is Emily and wears a pretty little cap and is as bald as a cueball!So beautiful those girls looked as they watched the American Idol Finals together in what the floor calls "The Sunshine Room".. Lilly sits with her new friend Emily and her sister who is also named Lilly. Chris Allen is the winner as Lilly is heartbroken Adam Lambert doesn't win.. her 4 chemotherapy medicines are placed on an IV pole Vincristine,Doxyrubicin,Cyclophosimide and Mesna (which protects her bladder).She is also hydrated and given anti-nausea medicines.. It all seems sureal and not that bad until 4 am when Lilly wakes up nauseous. They give her Atavan along with Zofran and she falls back in 15 minutes..
Lilly does pretty well for this treatment. Her beautiful long hair is still decorating her adoring face. I am told this will only last for a few weeks. So I spend the night searching for a wig for my daughter and emailing people and googling Ewing's Sarcoma for the first time..
The next day Lilly searches out her friend Emily but she is sleeping due to the benadryl she takes for her nausea. Emily taught Lilly to ride her IV pole. Emily is Lilly's window to the future. She has about 3 treatments to go and she already has had her surgery. He father is a flurry of information.These 2 people I will grow to love ... and so will Lilly...
